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Last updated June 24, 2004

Patient support

A patient information booklet about Wegeners Granulomatosis is now available.

Below is a collection of links, which will lead you to sites containing information about Wegener's granulomatosis, ANCA, treatment and patient support.

European patient organizations
This is a list of contact addresses.

Wegener's Granulomatosis U.K.
The site is made by Wegener patients with the purpose of creating a forum where patients can learn from the experiences of others.

Wegener's Granulomatosis Support Group Of Australia Inc.
This is a non-profit organization dedicated to providing emotional and informational support to patients with Wegener's Granulomatosis.

Wegener's Granulomatosis Site (USA)
This page gives a brief description of Wegener Granulomatosis and the treatment of the disease. Furthermore, it holds a special section for patients containing a messages board, tips from patient to patient, contact lists and information about patient organizations.

Wegener's Granulomatosis Support Group
This site has been established to assist patients diagnosed with WG or other vasculitic illnesses, along with their families and friends, with understanding and managing the disease and recovery process.

Wegener's Granulomatosis Support Group of Canada
This site has been established to provide emotional and informational support to patients with WG, to assist them and their families in understanding the disease and recovery process, to educate the public about WG, and to support research into the cause, control and cure of WG.