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Last updated June 24, 2004
Patient support
A patient information booklet about Wegeners Granulomatosis is now
available.
Below is a collection of links, which will lead you to sites containing
information about Wegener's granulomatosis, ANCA, treatment and patient
support.
European patient organizations
This is a list of contact addresses.
Wegener's Granulomatosis U.K.
The site is made by Wegener patients with the purpose of creating a forum where
patients can learn from the experiences of others.
Wegener's Granulomatosis Support Group Of Australia Inc.
This is a non-profit organization dedicated to providing emotional and informational support to patients with Wegener's
Granulomatosis.
Wegener's Granulomatosis Site (USA)
This page gives a brief description of Wegener Granulomatosis and the treatment of the disease.
Furthermore, it holds a special section for patients containing a messages board, tips
from patient to patient, contact lists and information about patient
organizations.
Wegener's Granulomatosis Support Group
This site has been established to assist patients diagnosed with WG or other vasculitic
illnesses, along with their families and friends, with understanding and
managing the disease and recovery process.
Wegener's Granulomatosis Support Group of Canada
This site has been established to provide emotional and informational support to patients with
WG, to assist them and their families in understanding the disease and
recovery process, to educate the public about WG, and to support research
into the cause, control and cure of WG.
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